WARNING...This is a Looong post, with some yucky details...
It has been over 1 month since I first went to hospital with some serious symptoms (although I had been unwell up to 1 month before hand which may have been related, or not, who knows!) and It doesn't feel as though we are much closer to finding out what the cause is.
I've been to Mt. Isa Hospital for tests since my last update, and I've had the ultrasound on my adrenal gland and kidneys done, so tick, that tests done! The results have come back from that test, and it's great to hear my kidneys are functioning well, however, apparently you can't really see the adrenal gland in an ultrasound unless it is inflamed, so like the specialist said, "nothing negative or positive in that area could be seen from the ultrasound on the adrenal glands."
I did get some test results back though...The thyroid ultrasound shows it looks as it should (strangely though, my Cloncurry Doctor who I think is great by the way, believed I may have had a type of thyroid/graves disease, however, it doesn't seem to be the case now). My heart ultrasound shows I have a young, healthy heart (Love those words, Haha, young and healthy!), it's just that my heart isn't resting as it should. My 24 hour urine collection tests came back mostly great, which is GREAT, however, something to do with my adrenal glands are a little high. Another test I had weeks ago (can't remember what it's called, but I basically had a blood test, took a pill at night, and then had another blood test early the next morning to check my cortisol levels, something like that) that test I was told was abnormal also.
So a few days ago I went to my appointment at the diabetes/endocrinology clinic and I seen a specialist. I thought I would be told I had a form of thyroid disease (there is a short term thyroid disease and a lifelong thyroid disease), however, the specialist only spoke of this when I questioned him on it. He believes there is no evidence in the tests/scans to suggest any form of thyroid disease...so really that is GREAT news, and I'll take the GREAT news wherever I can get it! The problem still remains that the doctors and specialist still don't know what is going on, and they are edging closer to a type of adrenal gland syndrome (don't look it up, just don't) but are yet not sure because most of my tests show a HEALTHY, YOUNG lady, but a few tests show things are a bit high here, a bit not right there, if you know what I mean!
My symptoms can get too much for me at times when I have them! I actually thought for the second time since I've been unwell that I must be getting better because I had about 8 days straight with mild to no symptoms (YAY), and then BANG...it's like my body was no longer mine, it was overtaken by something else...I know it sounds sooo dramatic, but the change is VERY dramatic (although it can also be quite mild)...all of a sudden I was very irritable, anxious, clammy, thirsty, loose stalls all night long, very yucky taste in the low back of my throat that had me spitting up congestion all night long, breathlessness, strange feeling at the base of my neck, sleeplessness (despite taking a relaxant), tiredness, weakness, headache, blurry/black spots in my vision, racing heart...ARRGGGHHHHH is all I wanted to do! However, I reassured my family to rest just in case we needed to go to the hospital yet again, and I stayed still and quiet when I could...for some reason when I'm at this stage of whatever it is, I feel that I can't cope with anything, noise, movement, touch, strong smells...it's CRAZY.
So the specialist in Mt.Isa has arranged for me to have another CT scan, but this time on my abdominal area (they are trying to get a good look at my adrenal glands), I'll also be having a blood pressure monitor attached to me for a day or so at some stage.
On Wednesday while I was at the hospital I had quite a lot of bloods taken and urine tests. So the next 3 to 4 weeks I'll be having those tests, keeping in contact with my G.P, and then return to the specialist in the fourth week with the hope that he has some answers, and some good ones at that (being healed would be the ideal answer of course...I will always hope for that).
I feel for my family because we are going through a bit of a difficult time, just like many other families do, and we want it to be over with, with a good outcome...but for now we are a strong family unit who keeps running to GOD in prayer, on our knees desperately crying out to HIM...we don't give up...we RUN to HIM, and hope things will work out for our good. These words from the bible come to mind...All things work to good for those who love God and are called according to His purposes. His words/His whispers give me peace like NOTHING else can...and we will continue to hope and pray for a good outcome 👍
So if you have read this far, Thanks for reading my very long post, and do me one more favour...send up prayers to heaven xo Send prayers to God for my family and for me...for strength in this difficult time, for more of Gods beautiful peace, love and joy, for God to give the doctors wisdom in how they treat me, and most of all for full healing to my health.
You know what...despite all of this we are still making the most of everyday here living in outback Cloncurry. Yep, things have changed because usually when I'm unwell, I'm really unwell, but when I'm well...we make the most of it. It is just another part of our faith led journey, so we'll just have to see what happens next...we HOPE for the best!
I just want to THANK EVERYONE for your prayers and support xo
Thank You to House of Praise Church, Cloncurry Christian Church and all the other churches for praying for us xo Thank You to everyone for all the phone calls and messages of concern...THANK YOU VERY MUCH xo We appreciate YOU xo
Take Care!
Love,
Dimi xo
