What can I say...I'm quite frustrated with my health. it's been over 1 year since my body started behaving strangely and I still don't have any clear answers as to why.
The specialist in Perth was 100% sure I had an adrenal issues, he thought I had cushing syndrome, in fact he told me at my first appointment with him after reviewing my file that I have cushing syndrome. He said we'll do some more tests and then surgery and all should be well.
After many, many more tests, the specialist doesn't believe this is what I have and isn't really sure why I have certain symptoms.
He was able to witness an attack were my heart rate went up to about 130 while I was just sitting opposite him in a chair, he witnessed a few of my other symptoms but seems a bit baffled by it all.
I am now having more tests and been given some hormonal replacement tablets. The specialist is hoping it's some type of hormone imbalance and he's actually now looking at premature menopause, He isn't convinced, I'm not convinced but who knows?
A positive is that at my first visit to the specialist he advised me to stop taking propranolol, I was glad for this. I feel so much better off this medication. They were making me feel as though I never had enough sleep, no matter how much sleep I had and gave me numerous other side effects. These side effects cleared up once they were out of my system, so I'm so glad I could stop taking them (although my blood pressure seems higher now that I'm off these, but we'll keep an eye on that).
I've adjusted to many of my symptoms and mostly know how to handle them. My heart randomly racing is probably the most horrible symptom coupled with anxiety, however, I've learnt to try to relax, breath deeply, drink icy water, get to a cool place, I have been known to stick my head in the freezer and breath deeply, Haha, and put my feet up etc...One symptom that I haven't dealt with well is my weight going up and down dramatically.
Well when my weight goes down dramatically, I don't mind so much, HAHA, but when it goes up, it's horrible and it makes me feel even more unhealthy. My jeans have gone up 2 sizes since December, so I haven't been feeling to good about that.
Since this all started, I kind of developed a fear of making my heart rate go up on purpose, I was afraid it wouldn't go back down ( I started the gym in Cloncurry and it freaked me out after a month of going to the gym my heart rate wasn't cooperating and I stopped going). So I have avoided too much exercise in fear that my heart rate will stay up and not come back down, I still walk and swim though which is good.
I'm a bit braver these days though and I got the go ahead from the doctor to start the gym, as long as I don't allow my heart rate to go to high (good luck with that one I said to him, haha).
Well Shane and I have been hitting the gym for about 1 month and its mostly going well. My heart rate seems to stay higher than what it should be, however, I'm just pushing through and seeing how it goes...my life and things I want to do with it can't just stop because I have some health issues. Nope, that's just not how I roll.
I know it's been a long post I'll finish up in a moment...
We've decided (Shane and I), that I'm just going to get on with it, I'll have these last few tests the doctor wants me to have but after that I'm going to let it go. If need be I'll see the specialist again in 6 to 12 months but then get on with what I want to do. Not that my health issues where holding me back from everything, but are few things were put on the back burner till we knew what was going on with me.
Life is good and I'm going to keep living it...hopefully FULL of Fun and Adventure. I think I'm a little addicted to those things, I seriously don't want to live a mundane life. Fun and Adventure all the way please GOD, with a few extras along the way, haha!
If you could please pray for my health that would be wonderful. Myself and Shane cover ourselves and our girls in prayer and we are trusting in God regarding my health and regarding our journey. So the more prayer the better.
Thank You in advance for praying for us it is very much appreciated xo
My update and rant is now over 😊
Hope all you lovely people are enjoying life and hopefully you have a clear blue sky and beautiful sunshine as I do here in Perth 😉
Take Care,
Love Dimi xo
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